Northern California Chapter

National Marfan Foundation (NMF)

Information about Marfan syndrome, an inherited connective tissue disorder.

Description:

A chapter of the national foundation that is dedicated to fostering research and service programs dealing with Marfan syndrome, an inherited connective tissue disorder. Goals of the organization are to provide accurate and timely information about this condition to patients, family members and physicians, provide a means for patients and relatives to share experiences and to support one another and to improve medical care for those afflicted with the disorder. Meets quarterly in various places in northern California. Call for location. Guest speakers include physicians and other professionals who provide educational information about the disorder. Printed materials are available in English and Spanish.

Location

Public Transit:

Not necessary for service.

Services

Fees:

None. Yearly membership fee $35 for National Marfan Foundation. Cash and checks accepted.

Audience:

Persons interested in Marfan Syndrome

Eligibility:

None

How to Apply:

Apply by phone, write for information.

Service Wait Estimate:

N/A.

Service Areas:

Alameda County
Contra Costa County
Marin County
Northern California
San Francisco County
San Mateo County
Santa Clara County