Northern California Chapter

Huntington's Disease Society of America (HDSA)

Support and education about Huntington's disease for patients, their families and health professionals.

Description:

Assists Huntington's disease patients and their families, educates the public and health professionals and supports research directed to the eradication of Huntington's disease. Programs include an information and referral helpline, a quarterly newsletter, an annual general meeting featuring specialists in the field of research and support groups. A full-time social worker is on staff for information and referral as well as short-term counseling and crisis intervention. Patients, persons at risk to inherit the disease, spouses, friends and other caregivers meet monthly at support groups throughout northern California. Bay Area groups meet in Palo Alto, Fresno, Santa Rosa and Santa Cruz. An additional support group meets in Sacramento. Call for schedule and location. Trained speakers are available to give in-service presentations to nursing homes and other interested groups.

Location

Public Transit:

Varies according to meeting site.

Services

Fees:

None.

Audience:

Persons who have Huntington's disease and their families, professionals who work with these families and interested public

Eligibility:

None

How to Apply:

Apply by phone or mail for information or to be put on the mailing list for announcements of the group's activities.

Service Wait Estimate:

No wait.

Service Areas:

Alameda County
Central California
Contra Costa County
Marin County
Northern California
San Francisco County
San Mateo County
Santa Clara County